Today marks my second diabetes anniversary. Two years ago I was in my doctor’s office complaining of unquenchable thirst and unexplained weight loss. His nurse pricked my finger and fed a drop of my blood into her glucose meter. The meter read “Hi”. At that time I had no idea what that greeting meant, nor did I know how much that greeting would change my life.
Sure, after my diagnosis, I was scared and worried about a future with diabetes. But with the help of my family and my doctors and nurses I learned that I could manage this. And for the past year and a half I managed it quite well. I was confidant and felt like diabetes couldn’t stop me.
I got comfortable with my routine, never straying too far from my meal plan, exercising consistently and all around being a “good girl” when it came to my diabetes. The routine gave me some semblance of predictability with my blood sugar – when I do X, my blood sugar tends to end up around Y; when I eat Y, my blood sugar tends to end up around Z.
But, about mid-way through this year, the rules were changed – without my knowledge or permission. I started to notice that my blood sugar went up during my jogs instead of going down like I had gotten used to over the past year. My beloved breakfast treat – cottage cheese and berries – sent my blood sugars high, instead of keeping them steady like it used too. The same thing happened with my favorite lunchtime treat – a slice of low-carb bread with a tablespoon of almond butter. I was able to get away with a granola bar here and there, a grilled cheese sandwhich, or even a few pieces of chocolate without worrying too much – I had learned that 2 hours after indulging in these little treats my blood sugar would be within the normal range.
The routine I had put my faith in, that had gotten me through the first 18 months with diabetes and a steadily declining
A1C has stopped working. The best I can figure is that my pancreas has finally gone completely kaput. They say that newly diagnosed Type 1’s experience what’s called a honeymoon period where the pancreas still produces a little bit of insulin. I think my honeymoon is over. It’s the only explanation I can come up with for why my blood sugars have been incredibly difficult to manage over the past 6 months.
This change has been demoralizing and demotivating. I followed all the rules, I ate whole grains and fresh fruit, I exercised and I counted the carbs. Now my whole diabetes world is out of whack and its been making me miserable. It feels unfair, I did everything I was told and have been rewarded with a new set of rules and an already difficult disease made less manageable. My once sunny outlook has disappeared. Diabetes is not
a gift; it’s a chip on my shoulder.
I’ve spent the past six months unhappy and pissed-off and the change in my diabetes has been at the core of my newfound gloomy outlook. This negativity is eating at me and my anger tends to be misdirected at those I love who just want to help. I want my pancreas back; I want my berries and cottage cheese. I’m tired of the
rage boluses and I’m sick of fumbling with my insulin pen in public restrooms listening to drunk girls yelling and laughing while I’m praying I don’t drop my
meter in the toilet or my pen on the filthy floor. I want to escape and leave this place I’m in. But there is none, it is always with me and it will always be with me.
I can’t go on being depressed diabetes girl. It hasn’t gotten me anywhere the past six months. I have to start over. New year, new me, new routine.